Work Package 7
Empowerment of patients, caregivers and communities

Work Package Lead: Odense University Hospital

WP7 contains the identification, collection and analysis of patient and care professional needs, wishes and requirements for ADLIFE in order to ease the empowerment of both.

The use of the Patient Empowerment Platform is intended to both support and empower the patients and furthermore to enhance the patients and their caregivers’ life quality.

Objectives

 

  • Recording the diseases’ effects on the patients and caregivers and explore their needs via Patient Reported Outcomes (PROMs)

  • Enhancing patients’ and caregivers’ autonomy by improving individual knowledge and adaptive interventions through the platform with the purpose of enhancing the patients’ and caregivers’ empowerment and adherence to care plans

  • Increasing patient ‘centeredness’ allowing shared decision making

Activities and timelines

 

T7.1: Patient reported outcome measurements (PROM) and surveys to measure the patients' health and health-related quality of life

Timeline: M1-M13 (Jan 2020-Jan 2021)

T7.2: Patient Empowerment Intervention

Timeline: M3-M19 (Mar 2020-Jul 2021)

T7.3: Shared Decision-Making

Timeline: M6-M19 (Jun 2020-Jul 2021)